Jesy Nelson posts heartwarming video of daughter amid devastating health battle
Jesy Nelson shared a heartwarming video of baby Story Monroe, as the proud mum calls the adorable tot her "little ballerina". The touching video shows Jesy sweetly encouraging her little girl to say "Mumma".
The short clip shows her gently stroking her baby's head. She can be heard lovingly saying: "Story, say Mumma. Can you say Mumma?” Her beautiful tot looked lovingly up at her mum. Jesy wrote over the video: "Yeah not happening! (with a laughing emoji)"
It comes after theLittle Mix star revealed that her beautiful twin girls were diagnosed with Spinal Muscular Atrophy (SMA) Type 1 diagnosis. Jesy has been keeping her followers updated with how Story Monroe, and her twin sister Ocean Jade, are getting on.
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Jesy, who has been tirelessly campaigning for the NHS to provide a heel-prick test so other newborns can have the progressive disease diagnosed - and therefore treated - earlier in life. She has been documenting her daughters' progress.
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Last week, the 34-year-old shared another sweet clip of her girls practicing their 'ballerina' leg exercises, to help keep their legs moving. She could be heard speaking to one of her babies, saying: "Are you gonna show them how you move your legs?
"You're a little ballerina, come on. Good girl. Little ballerina, yes you are!"
According to the NHS, it can affect a child’s ability to sit up, crawl, or walk, and may also cause difficulties with breathing and swallowing. The condition occurs in an estimated one in 10,000 births, with type 1 accounting for around 60 per cent of cases. Without breathing support, children with type 1 SMA can die before their second birthday, but the NHS states that more are now surviving thanks to advances in treatment.
Jesy's twins have been given a one-off gene therapy infusion, which helps to preserve any muscles that are still functioning. Due to their rare condition, they also require regular physiotherapy and trips to Great Ormond Street Hospital.
While Jesy has been told her daughters may never walk, she remains positive about their future. Speaking to the Western Mail newspaper, she said her twins are doing "so well".
She said: "There isn’t a cure for SMA, so having this infusion is essentially what’s going to determine how their future looks in terms of what they can do. With SMA, it’s a day-to-day process.
"You can’t really look too far ahead because you’ll just drive yourself mad. It’s a lot, and bless them, they’re so tiny and going through so much, but my God, I’ve never met stronger girls in my life."
Meanwhile, Jesy's former Little Mix bandmate, Leigh-Anne Pinnock, has opened up in an interview with Australian radio DJ Smallzy. He asked about Jesy Nelson's recent documentary, Life After Little Mix, and how Jesy had said the Little Mix girls have reached out and offered support.
Leigh-Anne, 34, said: "Heartbreaking, just awful. We all obviously did reach out to her, it’s the worst thing ever. I think she’s really incredible for spreading the awareness.”
When asked if the former bandmates still have a 'sisterhood' since they split up,Leigh-Anne said: “I think that’s the special thing about us, we will always be there if we need each other for sure. I think, especially for me, Jade and Perrie, we’re super, super close and I think you need that in this industry too."
Leigh-Anne added: “There’s just so much toxicity that can come with it and there’s just so much pressure as well so knowing that you can just reach out to people that are going through it too, we’re the only ones that know exactly what this experience is like. It’s so needed.”
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